Skip to content

PPI Resources

PPI Resources

RDS North East and North Cumbria PPI Checklist: some questions to consider when beginning to develop PPI for your proposal

NIHR Public Involvement ‘Pocket’ Guide  A brief guide to the role of the Research Design Service in supporting public involvement in funding applications.

The UK Public Involvement Standards  Six standards and indicators for public involvement in research.

Top tips for carrying out PPI activities during COVID  Some TOP TIPS designed to help researchers who are in the process of applying for grants, consider how to ensure they can continue to collaborate with public representatives in a meaningful way during these challenging and exceptional times, produced by RDS South Central.

NIHR Increasing participation of  Black Asian and Minority Ethnic (BAME) groups in health and social care research  This toolkit is designed to help researchers develop more relevant research questions, consider engagement of BAME groups in a more structured way and provide tips on better participation and dissemination of research findings.

Briefing notes for researchers  An online resource of ten briefing notes for researchers on how to involve members of the public in research.  Includes supplementary material, case studies, and templates.

Top tips for public involvement  Seven tips for successful and meaningful public involvement.

‘Making it Clear’ campaign  Provides guidance for researchers and board/panel members in relation to developing a clear and concise plain English summary of research projects.

Payment and recognition for public involvement  There are a number of ways to recognise the contributions of members of the public who are actively involved in research. This page links to guides and practical advice on payment and non-monetary methods for recognising the time, skills and expertise provided by members of the public.

People in Research  Opportunities for public involvement in NHS, public health and social care research.

Public information pack 2018  A Public Information Pack (PIP) made up of 4 booklets, for members of the public who are interested in getting involved in health and social care research.

invoDIRECT  This online resource is a directory of networks, groups and organisations that support active public involvement in NHS, public health and social care research. The resource will allow individuals or networks, groups or organisations to be aware of and make contact with others who are carrying out similar work.

Public co-applicants in research – guidance on roles and responsibilities  Guidance developed jointly by the NHS R&D Forum, the Health Research Authority and INVOLVE for researchers and public contributors about the role of a public co applicant.

Involving children and young people in research: top tips and essential key issues for researchers  An overview of the key issues around involving children and young people in NHS, public health and social care research.

Going the extra mile  The final report and recommendations to the Director General Research and Development / Chief Medical Officer (CMO) Department of Health of the ‘Breaking Boundaries’ strategic review of public involvement in the National Institute for Health Research (NIHR).

The James Lind Alliance  The James Lind Alliance (JLA) is a non-profit making initiative established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the Top 10 unanswered questions or evidence uncertainties that they agree are the most important.

VOICE  is a unique organisation, comprising a large network of citizens across the UK and internationally. Members contribute immense insights, experience, ideas and vision to identify unmet needs and opportunities, to drive innovation on ageing and improve health research.

HealthWatch  are an independent national champion for people who use health and social care services. Every local authority has their own HealthWatch.

Generation R  A national network of Young People’s Advisory Groups (YPAGs) across the UK  including YPAG North England.   YPAGs promote and support the involvement of children and young people in the design and delivery of research.

A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standardsRaksha Pandya-Wood,  Duncan S. Barron and J. Elliott.

NIHR Benefits Advice Service for public involvement in research This free, confidential and personalised service is coordinated by the Bedford Citizens Advice Bureau to support members of the public whose welfare benefits may be affected by payment for involvement.

Plain English Summaries  A video resource for researchers by the RDS NENC consumer panel on how to write and edit a plain English summary

The role of Public Co-applicants in research A short video resource on the role and experiences of Public Co-applicants in research, in which Annabel, a Public Co-applicant on the E-CLAD UK trial, shares her insight

Abbreviations and acronyms A useful reference list of regularly used acronym’s and abbreviations